Deb Gordon spotlighted the New York Brain Tumor Walk with Emily Morrison, a brain tumor survivor and the Walk’s top fundraiser; and Laura Loro, Special Events Director at the National Brain Tumor Society. The National Brain Tumor Society’s mission is to find better treatments, and ultimately a cure for anyone diagnosed and living with a brain tumor, and to ensure that patients, their family members and loved ones have access to the comprehensive information they need.
Emily shared her story about learning she had a brain tumor on her 24th birthday in 2011, and discussed some of the symptoms she experienced, including extreme migraine headaches. Emily underwent several surgeries, chemotherapy and radiation, and although she was in remission a year later, the tumor itself remained inoperable. Emily also revealed that another tumor was discovered in February 2013, which caused her right eyesight to rapidly diminish. She has now completely lost vision in that eye, and is taking Avastin to try to restore it. Emily remains extremely positive and optimistic throughout her experiences and discussed how she first learned about the National Brain Tumor Society during her initial stay in the hospital and started raising funds from her hospital bed. She has made it her mission to raise awareness and funds for research to fight the disease.
Laura Loro provided data about brain tumors, which affects hundreds of thousands each year, has no known cause and randomly attacks all ages and ethnicities. Also discussed were the latest research developments, the Pediatric Research Initiative, which funds research to better understand pediatric brain tumors, and the GBM Research Initiative, which is aimed at increasing the survival rates of glioblastoma multiforme (GBM), the most deadly form of brain cancer.
Both women encouraged listeners to advocate on behalf of the brain cancer community for increased funding for research and health insurance options, and oral chemo parity, which is currently treated differently under healthcare than IV chemotherapy.
Emily wanted the audience to be aware that the brain tumor community has created a social media network on Twitter for brain tumor survivors to communicate with one another and discuss issues of concern to the community The chats are held on Sunday nights – #btsm at 10pm and 7p PST, and you can also connect at #BrainTumorThursday.
You can join Emily, along with FRESH 102.7’s Dylan and many other New Yorkers at the New York Brain Tumor Walk on Governor’s Island on Saturday, June 15th. It is one of twelve Walks that the National Brain Tumor Society holds to raise funds and awareness about the issue and is a fun, family day of activities, music, raffle prizes and more. Governor’s Island is a 7 minute Ferry ride from Manhattan and there will be private ferries taking participants to and from the Walk.
For more information, to register for the New York Brain Tumor Walk, or become a virtual participant, visit www.braintumorwalk.org/NewYork.
For more information about Emily Morrison and other causes she supports including Stupid Cancer®, an organization that helps young adults battling the disease, visit www.emilyinthecity.com.
–Deb Gordon/Fresh 102.7
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